Self-management of the affected arm after stroke

Nurse adjusting mans arm sling

Did you have a stroke and your arm was severely affected?

Or are you caring for a stroke survivor whose arm was severely affected?

If yes, we would like to invite you to take part in our study.

The study title is: Managing your affected arm after stroke (MyARM)

We want to find out about the experiences of people whose arm and hand have been severely affected by a stroke.

We also want to find out about the experiences of family members and friends.

The person with a severely affected arm

can move the arm very little, or not at all
may have spasticity (sometimes also called “high muscle tone”), which is a tightening of the muscles
may have pain and swelling

There are three different ways you can take part:

Give an interview now fully booked

Come to a focus groupnow fully booked

Complete a survey questionnaire survey still open: please share your experiences

What is the purpose of the study?

A stroke will cause arm and hand weakness three out of four times. This is a big problem for many stroke survivors, and a national research priority.

There has been very little research on what care stroke survivors themselves find most helpful, and how they themselves go about managing their severely affected arm and hand day-to-day.

The purpose of this study is to gather knowledge from people who have experience. Later on, we will build a resource or intervention that can help other stroke survivors and their carers manage the severely affected arm.

Thank you for taking the time to consider our study.

If you would like to find out more, please ask me any questions: I am a researcher at Kingston and St George’s.

Dr Stefan Tino Kulnik
Faculty of Health, Social Care and Education
6^th Floor Hunter Wing
St George’s Campus
Cranmer Terrace
London SW17 0RE

Email: s.t.kulnik@sgul.kingston.ac.uk
Telephone: 020 8725 2266
Mobile: 077 5836 9472

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