Self-management of the affected arm after stroke Managing your affected arm after stroke In spring of 2017, a study funded by Kingston University looked into the experiences of people whose arm and hand have been severely affected by stroke. What was the purpose of the study? A stroke will cause arm and hand weakness three out of four times. This is a big problem for many stroke survivors, and a national research priority. There has been very little research on what care stroke survivors themselves find most helpful, and how they themselves go about managing their severely affected arm and hand day-to-day. The purpose of the study was to gather knowledge from people who have experience. The study team are now building on this project, to develop a resource or intervention that can help other stroke survivors and their carers manage the severely affected arm. A brief study summary is available hereMyARM summary A scientific abstract of the study is available hereMyARM abstract The study team were: Dr Stefan Tino Kulnik, Shani Shamah, Kennedy Amo, Sushmita Mohapatra, Sara Gawned and Professor Fiona Jones MBE. We owe our gratitude to 49 stroke survivors and their family members who made this study possible by taking part and sharing their experiences and knowledge. We also thank the following organisations for their support in advertising the study: Aphasia Re-Connect, Bridges Self-Management, Carers Lewisham, Community Connections Lewisham, Different Strokes, Dyscover, Headway, Northern Ireland Chest Heart and Stroke, The ARNI Institute, The Stroke Association and Topaz Lambeth. If you would like to find out more about this study, please contact: Dr Stefan Tino Kulnik Faculty of Health, Social Care and Education 6th Floor Hunter Wing St George’s Campus Cranmer Terrace London SW17 0RE Email: s.t.kulnik@sgul.kingston.ac.uk Telephone: : +44(0)20 8725 2266 Mobile: +44(0)77 5836 9472 Save
