Embedding service user involvement in research
Service user involvement is a key part of all research and education in the Faculty of Health and Social Care Sciences. We aim to ensure that:
- Our research addresses service users' needs, improves patient and client outcomes and is widely disseminated
- Our education of health and social care professionals is research-based, innovative and promotes service user autonomy.
Service user involvement initiatives
Service user consultative forum
A forum for dialogue with, and input from, service users in developing, delivering and evaluating the Faculty's education programmes. More information: Denise Forte email@example.com.
Learning disability open meetings
A series of regular meetings held throughout the year, where a range of practitioners (education, health and social care) share their knowledge and experiences of working with people with learning disabilities and their carers. This has led to some strong working partnerships which have influenced practice, education, service delivery and the breaking down of barriers. More information: Jim Blair firstname.lastname@example.org.
Learning disability caring solutions
This group comprises 12 parents representing a range of children and adults with learning disabilities and complex needs. The group enables parents to share concerns, identify priorities and form collaborative partnerships with education, health and social care service providers to influence change. More information: Jim Blair email@example.com.
Honorary fellow in patient and public involvement
Sally Brearley holds this position in the Faculty and provides support for patient and public involvement in research, contributing to the writing of proposals and leading on patient and public involvement for a number of funded projects. Sally also engages in teaching and provides input to several Faculty committees.
Service user involvement in daily work
Service users contribute to a range of ongoing teaching and research activities including student recruitment and selection, curriculum development, teaching, student assessment, the writing of research proposals, data collection, analysis and dissemination of research findings and providing input into Faculty committees.
Examples of research and education projects with service user involvement
EVIDEM-C: a programme of research fosucing on continence promotion and incontinence management for people with memory problems living at home
A carer chairs the programme’s advisory group. Service users and carers assist in recruitment, offer advice on the suitability of written material for participants, provide new insights on data analysis and project outputs, and recommend dissemination strategies. Funded by NIHR Programme Grant. Find out more at EVIDEM-C
New ways of working in mental health: assessing and informing the emergence of peer worker roles in mental health service delivery
This project has been jointly developed with service users. Data collection and analysis will be undertaken by service user researchers with the participation of community based and service user led organisations. Funded by NIHR SDO Programme. More information: firstname.lastname@example.org
Service user and carer involvement in the School of Social Work
The School of Social Work involves service user and carer representatives in all aspects of delivering its education programmes at both undergraduate and postgraduate level, from student selection through to teaching, assessment and quality assurance of courses. More information: Christine Skilton email@example.com
Interprofessional teamwork across stroke care pathways: outcomes and patient and carer experience
Service users and carers provide advice on recruitment of patients and carers for this NIHR SDO Programme funded research study, and on analysis of interview transcripts; they will also be involved in dissemination activities. More information: Ruth Harris firstname.lastname@example.org
Knowing what it means to care: developing a national carers' strategy for personality disorder
Service user involvement in this project included design of the study and leading on undertaking the research. The report was largely written by a service user researcher. Funded by DH Personality Disorders Programme. More information: email@example.com
ePsychNurse.Net: Towards improved quality – developing nurses’ continuing vocational training in psychiatric hospitals and inpatient units
Service user involvement included the development of a variety of course materials. Funded by EU Leonardo da Vinci Programme. More information: Mary Chambers firstname.lastname@example.org
Understanding the barriers and facilitators of supporting self care in mental health NHS trusts
Service user and carer researchers developed the study, undertook all the interviews, and contributed to data analysis and report writing. Funded by NIHR SDO Programme. More information: email@example.com
Evaluation of whether midwife lecturers bring a unique contribution to the outcomes of preregistration midwifery education
Service users participated in the research project steering group, provided advice and women’s views on the education of midwives. Funded by the Nursing and Midwifery Council. More information: Val Collington firstname.lastname@example.org
The lived experiences of detained patients
Service users were involved in all aspects of this project from developing the project plan, through data collection and analysis, to disseminating findings. More information: Mary Chambers email@example.com
Examples of published articles on service user involvement
- Purnell N, Gillard S (2009). Service user involvement in mental health research: practical and ethical considerations. Applied Research in Health and Social Sciences: Interface and Interaction. 5(2), 17-22.
- Gillard S, Turner K, Lovell K et al (2010). Staying native: co-production in mental health services research. International Journal of Health Service Management. 23(6), 567-577.
- Gillard S, Turner K, Neffgen M et al (2010). Doing research together: bringing down barriers through the ‘coproduction’ of personality disorder research. Mental Health Review Journal. 15(4), 29-35.
- Gillard S, Turner K, Chambers M, Lovell C, Goodrich-Purnell N (2010). What difference does it make? Finding evidence of the impact of mental health service user researchers on research into the experiences of detained psychiatric patients. Health Expectations DOI: 10.1111/j.1369- 7625.2010.00596.x
- Morrow E, Ross F, Grocott P, Bennett J (2010). A model and measure for quality service user involvement in health research. International Journal of Consumer Studies. 34(5), 532-539.
- Smith E, Donovan S, Beresford, P, Manthorpe J, Brearley S, Sitzia J, Ross F (2009). Getting ready for user involvement in a systematic review. Health Expectations. 12(2), 197-208.
- Smith E, Ross F, Donovan S, Manthorpe J, Brearley S, Sitzia J, Beresford P (2008). Service user involvement in nursing, midwifery and health visiting research: a review of the evidence. International Journal of Nursing Studies. 45(2), 298-315.