Inaugural nursing textbook providing guidance on caring for babies with life-limiting conditions launched by Kingston University expert

The textbook, Neonatal Palliative Care for Nurses, was launched at Child Bereavement UK’s tenth Neonatal Palliative and End of Life Care Conference in Leeds earlier this month by Professor of Children’s Nursing at Kingston and St George’s Jayne Price. She was joined by co-editors senior neonatal nurse consultant Alexandra Mancini (Lead editor) and Great Ormond Street Hospital’s Tara Kerr-Elliott.

Publication of the guidance comes at the start of the International Year of the Nurse and Midwife, something designated by the World Health Organisation to coincide with what would have been Florence Nightingale’s 200th birthday.

The book provides advice based on evidence based palliative care for babies, alongside support for their families, and is presented in two parts. The first part covers a background to neonatal palliative care, its legal and ethical concepts, organ donation, models of care and supporting the family after death, while the second part presents a global snapshot of neonatal palliative care in 14 different countries.

The book was written by international neonatal palliative care experts and shares experiences of parents throughout the book through case studies and quotes. An expert panel of neonatal nurses highlight key points for practice at the end of each chapter.

Professor Price said this publication has come at a time when palliative care for babies and their families is rightly receiving much attention currently and is high on the agenda. “It’s an honour to be part of the development of this exciting textbook providing such advice to nurses and midwives, as well as students, on neonatal palliative care. The guidance aims to help our amazing nurses provide the best care including choices for babies and their families at such a difficult time,” she said.